End of day 6

Well our night started out great. After a good nap in the swing we settled her into bed and we got in "bed" ourselves (I hardly call a bench with a cushion and a chair that reclines a bed, but after a while, you can sleep anywhere), when our night nurse came in, saw stella's O2 sat at 85, and immediately put her back on oxygen. She hasn't been on oxygen in well over 24 hours and has been dipping to 85 all the time with no oxygen!!! I am so so tired of this. Now they will make us wait a full 24 hours off oxygen, whenever that starts, before we can go home. So now we're looking at Tuesday being the earliest we can even think about getting out. Not to mention she took a grand total of 2 ounces of milk in about 24 hours. And also any little movement at all triggers coughing spells that last at least 1 1/2 hours with "aftershocks" for 20 - 30 minutes after that. And let me tell you, night nurses think everybody should be up at night. They walk in and leave the door wide open so it's bright in the room, talk loudly, and jostle her around to make sure she's good and awake no matter what kind of peaceful state she's in when they find her. Then they want to rub on her and pat on her to try to get her to sleep. I'm her mother--I'll get her back to sleep. And by the way--leave her alone for a little while!!!! I just want her to be well, and EAT, and be able to GO HOME!!!


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